"It is so easy to look at the painting and see the entirety of the NICU rollercoaster, where sometimes the cloud/sunshine struggle played on repeat in ten minute intervals. I can see the feeding struggles, the Cerebral Palsy diagnosis at 8 months adjusted age, her subsequent and related failure to thrive and the placement of the G-tube, the hospitalization with what was most likely COVID at the beginning of 2020, and to our present focus on managing her seizures and associated challenges.
Though the number of seizures she has had now qualify her for the Epilepsy diagnosis as well, her primary diagnosis and reason for the development of the seizures lies with her Cerebral Palsy diagnosis that goes all the way back to the beginning with her premature birth. I have no choice but to marvel at all that God has done. What I see as a beautiful mess, he sees through to the end."